open access

Vol 84, No 4 (2016)
ORIGINAL PAPERS
Submitted: 2016-07-14
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Quality of life in adults with cystic fibrosis: the Greek experience

Maria Stofa, Theodoros Xanthos, Konstantinos Ekmektzoglou, Athanasios Chalkias, Dimitrios Barouxis, Ioannis Pantazopoulos, Nicoletta Iacovidou
DOI: 10.5603/PiAP.2016.0025
·
Pneumonol Alergol Pol 2016;84(4):205-211.

open access

Vol 84, No 4 (2016)
ORIGINAL PAPERS
Submitted: 2016-07-14

Abstract

INTRODUCTION: Recent developments in treatment have steadily raised the median predicted age of survival for people with Cystic Fibrosis (CF). We report the health-related quality of life (HRQoL) in CF adult patients and correlate our findings with the patients’ demographic characteristics.

MATERIAL AND METHODS: The Cystic Fibrosis Quality of Life (CFQoL) questionnaire was answered by 77 CF adult patients. The questionnaire included questions pertaining to age, sex and level of education and covered eight sections of functioning.

RESULTS: The highest score was reported in the “Social Functioning” section, while the lowest in the “Concerns for the Future” section. When different age groups were compared, statistical significances were reported in “Physical Functioning”, “Interpersonal Relationships”, and the “Career Concerns” section, with older patients reporting statistically higher HRQoL scores than younger ones (p < 0.005). No statistically significant difference was reported amongst the scoring between male and female CF patients. When different educational levels were compared, patients that had received a higher educational training scored statistically higher in all but one sections of the questionnaire when compared with patients of a lower educational level (p < 0.005).

CONCLUSION: More than half Greek adult CF patients report that they are capable to participate in social activities but most of them are worried about the outcome of their disease and its effect on their lives.

Abstract

INTRODUCTION: Recent developments in treatment have steadily raised the median predicted age of survival for people with Cystic Fibrosis (CF). We report the health-related quality of life (HRQoL) in CF adult patients and correlate our findings with the patients’ demographic characteristics.

MATERIAL AND METHODS: The Cystic Fibrosis Quality of Life (CFQoL) questionnaire was answered by 77 CF adult patients. The questionnaire included questions pertaining to age, sex and level of education and covered eight sections of functioning.

RESULTS: The highest score was reported in the “Social Functioning” section, while the lowest in the “Concerns for the Future” section. When different age groups were compared, statistical significances were reported in “Physical Functioning”, “Interpersonal Relationships”, and the “Career Concerns” section, with older patients reporting statistically higher HRQoL scores than younger ones (p < 0.005). No statistically significant difference was reported amongst the scoring between male and female CF patients. When different educational levels were compared, patients that had received a higher educational training scored statistically higher in all but one sections of the questionnaire when compared with patients of a lower educational level (p < 0.005).

CONCLUSION: More than half Greek adult CF patients report that they are capable to participate in social activities but most of them are worried about the outcome of their disease and its effect on their lives.

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Keywords

cystic fibrosis, quality of life, adults, Greece

About this article
Title

Quality of life in adults with cystic fibrosis: the Greek experience

Journal

Advances in Respiratory Medicine

Issue

Vol 84, No 4 (2016)

Pages

205-211

DOI

10.5603/PiAP.2016.0025

Bibliographic record

Pneumonol Alergol Pol 2016;84(4):205-211.

Keywords

cystic fibrosis
quality of life
adults
Greece

Authors

Maria Stofa
Theodoros Xanthos
Konstantinos Ekmektzoglou
Athanasios Chalkias
Dimitrios Barouxis
Ioannis Pantazopoulos
Nicoletta Iacovidou

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