open access
Practical aspects of nursing care provided to patients diagnosed with amyotrophic lateral sclerosis receiving home mechanical ventilation
, 1, 1, 1
Affiliations- Uniwersytet M.Kopernika w Toruniu, Collegium Medicum w Bydgoszczy, ul. Jagiellońska 13/15, 85-067 Bydgoszcz, Poland
open access
Abstract
The article presents the practical aspects of home care provided to patients diagnosed with amyotrophic
lateral sclerosis (ALS) receiving mechanical ventilation. It discusses issues related to qualifying patients
diagnosed with ALS for mechanical ventilation, patients’ palliative care at home and education of caregivers.
The most important nursing problems facing caregivers and recommended approaches are discussed.
Attention is drawn to the role of nurses who provide palliative care to patients staying at home, particularly
to their important role in educating patients’ families.
Abstract
The article presents the practical aspects of home care provided to patients diagnosed with amyotrophic
lateral sclerosis (ALS) receiving mechanical ventilation. It discusses issues related to qualifying patients
diagnosed with ALS for mechanical ventilation, patients’ palliative care at home and education of caregivers.
The most important nursing problems facing caregivers and recommended approaches are discussed.
Attention is drawn to the role of nurses who provide palliative care to patients staying at home, particularly
to their important role in educating patients’ families.
Keywords
invasive mechanical ventilation, non-invasive mechanical ventilation, palliative care, nursing care, amyotrophic lateral sclerosis
About this articleTitle
Practical aspects of nursing care provided to patients diagnosed with amyotrophic lateral sclerosis receiving home mechanical ventilation
Journal
Palliative Medicine in Practice
Issue
Article type
Review paper
Pages
42-52
Published online
2021-02-26
Page views
611
Article views/downloads
1259
DOI
Bibliographic record
Palliat Med Pract 2021;15(1):42-52.
Keywords
invasive mechanical ventilation
non-invasive mechanical ventilation
palliative care
nursing care
amyotrophic lateral sclerosis
Authors
Katarzyna Butna
Anna Pyszora
Anna Adamczyk
Małgorzata Krajnik
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