open access

Vol 14, No 2 (2020)
Short communication
Published online: 2020-05-20
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Neurological palliative care — who, how, when?

David John Oliver
DOI: 10.5603/PMPI.2020.0016
·
Palliat Med Pract 2020;14(2):75-77.

open access

Vol 14, No 2 (2020)
Short communication
Published online: 2020-05-20

Abstract

There is increasing collaboration between palliative care and neurology, intending to improve the quality
of care and quality of life of people with neurological disease and their families.

Abstract

There is increasing collaboration between palliative care and neurology, intending to improve the quality
of care and quality of life of people with neurological disease and their families.

Get Citation

Keywords

palliative care, neurology, collaboration

About this article
Title

Neurological palliative care — who, how, when?

Journal

Palliative Medicine in Practice

Issue

Vol 14, No 2 (2020)

Pages

75-77

Published online

2020-05-20

DOI

10.5603/PMPI.2020.0016

Bibliographic record

Palliat Med Pract 2020;14(2):75-77.

Keywords

palliative care
neurology
collaboration

Authors

David John Oliver

References (21)
  1. World Health Organization. (2002). Palliative care. http://www.who.int/cancer/palliative/definition/en/.
  2. Oliver DJ, Borasio GD, Caraceni A, et al. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur J Neurol. 2016; 23(1): 30–38.
  3. Temel JS, Greer JA, Muzikansky A, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010; 363(8): 733–742.
  4. Gomes B, Calanzani N, Curiale V, et al. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev. 2013(6): CD007760.
  5. Edmonds P, Hart S, Vivat B, et al. Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service. Mult Scler. 2010; 16(5): 627–636.
  6. Higginson IJ, McCrone P, Hart SR, et al. Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. J Pain Symptom Manage. 2009; 38(6): 816–826.
  7. Veronese S, Gallo G, Valle A, et al. Specialist palliative care improves the quality of life in advanced neurodegenerative disorders: NE-PAL, a pilot randomised controlled study. BMJ Support Palliat Care. 2017; 7(2): 164–172.
  8. National Institute for Health and Care Excellence. NICE Guidance on Motor Neurone Disease. 2016. NICE. http://www.nice.org.uk/NG42.
  9. National Institute for Health and Care Excellence Parkinson’s disease in adults. 2017. https://www.nice.org.uk/guidance/ng71.
  10. Solari A, Giordano A, Sastre-Garriga J, et al. guideline task force, guideline task force. EAN guideline on palliative care of people with severe, progressive multiple sclerosis. Eur J Neurol. 2020 [Epub ahead of print].
  11. Aridegbe T, Kandler R, Walters SJ, et al. The natural history of motor neuron disease: assessing the impact of specialist care. Amyotroph Lateral Scler Frontotemporal Degener. 2013; 14(1): 13–19.
  12. Rooney J, Byrne S, Heverin M, et al. A multidisciplinary clinic approach improves survival in ALS: a comparative study of ALS in Ireland and Northern Ireland. J Neurol Neurosurg Psychiatry. 2015; 86(5): 496–501.
  13. Aoun SM, Breen LJ, Howting D, et al. Receiving the news of a diagnosis of motor neuron disease: What does it take to make it better? Amyotroph Lateral Scler Frontotemporal Degener. 2016; 17(3-4): 168–178.
  14. Chapman S. Advance Care planning. In: Oliver D. ed. End of life care in neurological disease. Springer, London 2013: 133–142.
  15. Robinson MT, Holloway RG, Robinson MT, et al. Palliative Care in Neurology. Mayo Clin Proc. 2017; 92(10): 1592–1601.
  16. Radbruch L, Payne S, Radbruch L, et al. White Paper on standards and norms for hospice and palliative care in Europe: part 1. Eur J Palliat Care. 2009; 16: 278–289.
  17. Bowers B, Ryan R, Kuhn I, et al. Anticipatory prescribing of injectable medications for adults at the end of life in the community: A systematic literature review and narrative synthesis. Palliat Med. 2019; 33(2): 160–177.
  18. Radbruch L, Leget C, Bahr P, et al. Board Members of EAPC, Board Members of EAPC. Euthanasia and physician-assisted suicide: A white paper from the European Association for Palliative Care. Palliat Med. 2016; 30(2): 104–116.
  19. Connolly S, Galvin M, Hardiman O, et al. End-of-life management in patients with amyotrophic lateral sclerosis. The Lancet Neurology. 2015; 14(4): 435–442.
  20. Creutzfeldt CJ, Robinson MT, Holloway RG, et al. Neurologists as primary palliative care providers: Communication and practice approaches. Neurol Clin Pract. 2016; 6(1): 40–48.
  21. Oliver D, Hepgul N, Borasio GD, et al. Collaboration between neurology and palliative care; a European survey. Poster at the 5th European Academy of Neurology Congress, Oslo. June 2019.

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