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The meaning of dignity patient question and changes in the approach to this issue of cancer patients during home hospice care
Affiliations- Ludwik Rydygier Collegium Medicum in Bydgoszcz, Nicolaus Copernicus University in Toruń, ul. Jagiellońska 13-15, 85-067 Bydgoszcz, Poland
- Bydgoska Szkoła Wyższa, ul. Unii Lubelskiej 4c, 85-059 Bydgoszcz, Poland
open access
Abstract
Introduction. M.H. Chochinov’s dignity question: What do I need to know about you as a person to take
the best care of you that I can? is a brief diagnostic and therapeutic intervention. The aim of the study
was to assess how cancer patients assess the relevance of the question, how they answer and whether
the evaluation of this method changes with the duration of home palliative care.
Patients and methods. The study involved 200 patients of the home hospice, who were divided into 2
groups. Group A comprised 100 patients receiving palliative care for up to 7 days, group B included 100
patients under care exceeding 7 days. All patients were posed a dignity question and 2 related ones: whether
they consider this question important and whether it should be recommended in practice. In group A, the
study was repeated after at least 21 days. Competent judges were then selected and the answers were
assigned to specific categories.
Results. The most frequently chosen answer was the one from the category of request for medical staff’s
help or support, which was characterised by the greatest variability under the influence of time — exchange
for an answer: nothing, you already know everything about me. The vast majority of the surveyed
patients answered affirmatively to the question about the significance of interventions regarding the care
for patients and agreed that the question should be recommended in practice.
Conclusions. In most patients the answers to the dignity question change with the duration of home
palliative care, which may be related to deepening relations with medical staff. The dignity question has
been considered significant regarding the patient care.
Abstract
Introduction. M.H. Chochinov’s dignity question: What do I need to know about you as a person to take
the best care of you that I can? is a brief diagnostic and therapeutic intervention. The aim of the study
was to assess how cancer patients assess the relevance of the question, how they answer and whether
the evaluation of this method changes with the duration of home palliative care.
Patients and methods. The study involved 200 patients of the home hospice, who were divided into 2
groups. Group A comprised 100 patients receiving palliative care for up to 7 days, group B included 100
patients under care exceeding 7 days. All patients were posed a dignity question and 2 related ones: whether
they consider this question important and whether it should be recommended in practice. In group A, the
study was repeated after at least 21 days. Competent judges were then selected and the answers were
assigned to specific categories.
Results. The most frequently chosen answer was the one from the category of request for medical staff’s
help or support, which was characterised by the greatest variability under the influence of time — exchange
for an answer: nothing, you already know everything about me. The vast majority of the surveyed
patients answered affirmatively to the question about the significance of interventions regarding the care
for patients and agreed that the question should be recommended in practice.
Conclusions. In most patients the answers to the dignity question change with the duration of home
palliative care, which may be related to deepening relations with medical staff. The dignity question has
been considered significant regarding the patient care.
Keywords
dignity, home hospice, dignity question, palliative care
About this articleTitle
The meaning of dignity patient question and changes in the approach to this issue of cancer patients during home hospice care
Journal
Palliative Medicine in Practice
Issue
Article type
Research paper
Pages
89-94
Published online
2020-05-18
Page views
863
Article views/downloads
608
DOI
Bibliographic record
Palliat Med Pract 2020;14(2):89-94.
Keywords
dignity
home hospice
dignity question
palliative care
Authors
Marta Łabuś-Centek
Damian Jagielski
Małgorzata Krajnik
References (14)- 2020 WHO. www.who.int/cancer/palliative/definition/en/.
- Chochinov HM. Dignity in care: time to take action. J Pain Symptom Manage. 2013; 46(5): 756–759.
- WN PWN SA. Copyright 1997-2020. www.sjp.pwn.pl.
- Chochinov HM. The secret is out: patients are people with feelings that matter. Palliat Support Care. 2013; 11(4): 287–288.
- Johnston B, Pringle J, Gaffney M, et al. The dignified approach to care: a pilot study using the patient dignity question as an intervention to enhance dignity and person-centred care for people with palliative care needs in the acute hospital setting. BMC Palliat Care. 2015; 14: 9.
- Julião M, Courelas C, Costa MJ, et al. The Portuguese versions of the This Is ME Questionnaire and the Patient Dignity Question: tools for understanding and supporting personhood in clinical care. Ann Palliat Med. 2018; 7(Suppl 3): S187–S195.
- Arantzamendi M, Belar A, Martínez M. Promoting patient-centred palliative care: a scoping review of the patient dignity question. Curr Opin Support Palliat Care. 2016; 10(4): 324–329.
- Johnston B, Gaffney M, Pringle J, et al. The person behind the patient: a feasibility study using the Patient Dignity Question for patients with palliative care needs in hospital. Int J Palliat Nurs. 2015; 21(2): 71–77.
- Davies E, Higginson IJ. (ed.). Better Palliative Care for Older People. World Health Organization Regional Office for Europe, Copenhagen 2004.
- Heath S. End–of–Life patient satisfaction hinges of longer hospice care. Patient Satisfaction News. 5 January 2018.
- Chochinov HM, McClement S, Hack T, et al. Eliciting Personhood Within Clinical Practice: Effects on Patients, Families, and Health Care Providers. J Pain Symptom Manage. 2015; 49(6): 974–80.e2.
- Kitta A, Adamidis F, Unseld M, et al. Retrospective qualitative pilot study incorporating patients' personal life aspects on admission to palliative care : What should we know about patients to give them the best possible care? Wien Klin Wochenschr. 2019; 131(21-22): 576–581.
- Monforte-Royo C, Crespo I, Rodríguez-Prat A, et al. The role of perceived dignity and control in the wish to hasten death among advanced cancer patients: A mediation model. Psychooncology. 2018; 27(12): 2840–2846.
- Łabuś-Centek M, Krajnik M. Dlaczego chory prosi o przyśpieszenie swojej śmierci. Med Prakt. 2019(2): 128–133.
