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Awareness building and improving participation of local communities in palliative care

Sunjida Shahriah12, Sachin Dwivedi13, Sucheera Amornmahaphun14, Suman Seshkar1, Somaye Pouy15, Sidharth Puri16, Hemdeep Kaur1, Shoon Mya Aye1, Risa Vernette N Sangma17, Shyh Poh Teo189
Affiliations
  1. Fellowship in Palliative Care Programme, Institute of Palliative Medicine, India
  2. Palliative Care Society of Bangladesh, Bangladesh
  3. Centre of Excellence in Nursing Education and Research, All India Institute of Medical Sciences, Rishikesh, India
  4. Karuna Peera Kamthorn Palliative Care Centre, Roi et Hospital, Thailand
  5. School of Nursing and Midwifery, Guilan University of Medical Sciences, Rasht, Iran
  6. Department of Critical Care Medicine, Paras Hospitals, Panchkula, India
  7. Department of Community Medicine, Sri Guru Ram Das University of Health Sciences, Sri Amritsar, Punjab, India
  8. Department of Internal Medicine, RIPAS Hospital, Brunei Darussalam
  9. PAPRSB Institute of Health Sciences, Universiti Brunei Darussalam, Brunei Darussalam

open access

Ahead of Print
Review paper
Published online: 2024-02-08

Abstract

There are many people experiencing serious health-related suffering that would benefit from palliative care. However, this service is inaccessible or underdeveloped in many parts of the world. One of the main starting points for introducing or developing palliative care services is improving awareness and participation for palliative care in the community. A group of clinicians from diverse backgrounds discussed how to implement this and this paper is a culmination of ideas arising from these conversations. For awareness building, social media campaigns, awareness at food festivals, national palliative care day programs, sharing stories and testimonials to stimulate conversations regarding palliative care and a “human library” project were described. For improving community participation, community volunteer development programs, “adopt a grandma” initiative, medical student palliative care project, workshops and training for non-communicable diseases and community nursing cross-specialty collaborations are suggested. It is hoped that these proposals would stimulate further ideas and support implementation of palliative care in different settings.

Abstract

There are many people experiencing serious health-related suffering that would benefit from palliative care. However, this service is inaccessible or underdeveloped in many parts of the world. One of the main starting points for introducing or developing palliative care services is improving awareness and participation for palliative care in the community. A group of clinicians from diverse backgrounds discussed how to implement this and this paper is a culmination of ideas arising from these conversations. For awareness building, social media campaigns, awareness at food festivals, national palliative care day programs, sharing stories and testimonials to stimulate conversations regarding palliative care and a “human library” project were described. For improving community participation, community volunteer development programs, “adopt a grandma” initiative, medical student palliative care project, workshops and training for non-communicable diseases and community nursing cross-specialty collaborations are suggested. It is hoped that these proposals would stimulate further ideas and support implementation of palliative care in different settings.

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Keywords

awareness, community, nursing, palliative care, participation

About this article
Title

Awareness building and improving participation of local communities in palliative care

Journal

Palliative Medicine in Practice

Issue

Ahead of Print

Article type

Review paper

Published online

2024-02-08

Page views

130

Article views/downloads

110

DOI

10.5603/pmp.98811

Keywords

awareness
community
nursing
palliative care
participation

Authors

Sunjida Shahriah
Sachin Dwivedi
Sucheera Amornmahaphun
Suman Seshkar
Somaye Pouy
Sidharth Puri
Hemdeep Kaur
Shoon Mya Aye
Risa Vernette N Sangma
Shyh Poh Teo

References (17)
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  12. Zomato. Turning the Tables [Internet]. Zomato; 2017 [updated 2017 Apr 10]. https://blog.zomato.com/turning-the-tables (4.01.2024).
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  17. Mulvihill C, Harrington A, Robertson A. A literature review of the role of the specialist palliative care community nurse. Int J Palliat Nurs. 2010; 16(4): 163–172.

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