open access
Awareness building and improving participation of local communities in palliative care
- Fellowship in Palliative Care Programme, Institute of Palliative Medicine, India
- Palliative Care Society of Bangladesh, Bangladesh
- Centre of Excellence in Nursing Education and Research, All India Institute of Medical Sciences, Rishikesh, India
- Karuna Peera Kamthorn Palliative Care Centre, Roi et Hospital, Thailand
- School of Nursing and Midwifery, Guilan University of Medical Sciences, Rasht, Iran
- Department of Critical Care Medicine, Paras Hospitals, Panchkula, India
- Department of Community Medicine, Sri Guru Ram Das University of Health Sciences, Sri Amritsar, Punjab, India
- Department of Internal Medicine, RIPAS Hospital, Brunei Darussalam
- PAPRSB Institute of Health Sciences, Universiti Brunei Darussalam, Brunei Darussalam
open access
Abstract
There are many people experiencing serious health-related suffering that would benefit from palliative care. However, this service is inaccessible or underdeveloped in many parts of the world. One of the main starting points for introducing or developing palliative care services is improving awareness and participation for palliative care in the community. A group of clinicians from diverse backgrounds discussed how to implement this and this paper is a culmination of ideas arising from these conversations. For awareness building, social media campaigns, awareness at food festivals, national palliative care day programs, sharing stories and testimonials to stimulate conversations regarding palliative care and a “human library” project were described. For improving community participation, community volunteer development programs, “adopt a grandma” initiative, medical student palliative care project, workshops and training for non-communicable diseases and community nursing cross-specialty collaborations are suggested. It is hoped that these proposals would stimulate further ideas and support implementation of palliative care in different settings.
Abstract
There are many people experiencing serious health-related suffering that would benefit from palliative care. However, this service is inaccessible or underdeveloped in many parts of the world. One of the main starting points for introducing or developing palliative care services is improving awareness and participation for palliative care in the community. A group of clinicians from diverse backgrounds discussed how to implement this and this paper is a culmination of ideas arising from these conversations. For awareness building, social media campaigns, awareness at food festivals, national palliative care day programs, sharing stories and testimonials to stimulate conversations regarding palliative care and a “human library” project were described. For improving community participation, community volunteer development programs, “adopt a grandma” initiative, medical student palliative care project, workshops and training for non-communicable diseases and community nursing cross-specialty collaborations are suggested. It is hoped that these proposals would stimulate further ideas and support implementation of palliative care in different settings.
Keywords
awareness, community, nursing, palliative care, participation
Title
Awareness building and improving participation of local communities in palliative care
Journal
Palliative Medicine in Practice
Issue
Article type
Review paper
Published online
2024-02-08
Page views
130
Article views/downloads
110
DOI
Keywords
awareness
community
nursing
palliative care
participation
Authors
Sunjida Shahriah
Sachin Dwivedi
Sucheera Amornmahaphun
Suman Seshkar
Somaye Pouy
Sidharth Puri
Hemdeep Kaur
Shoon Mya Aye
Risa Vernette N Sangma
Shyh Poh Teo
- Knaul FM, Farmer PE, Krakauer EL, et al. Alleviating the access abyss in palliative care and pain relief-an imperative of universal health coverage: the Lancet Commission report. Lancet. 2018; 391(10128): 1391–1454.
- Clark D, Baur N, Clelland D, et al. Mapping levels of palliative care development in 198 countries: the situation in 2017. J Pain Symptom Manage. 2020; 59(4): 794–807.e4.
- Venkatasalu MR, Teo SP, Abdullah S, et al. The need for a national palliative and end of life care policy in Brunei Darussalam. Brunei Darussalam J Health. 2017; 7(1): 1–4.
- Teo SP. Geriatric medicine concepts: trajectory of illness, life course approach and comprehensive geriatric assessment. Pac J Med Sci. 2021; 22(1): 82–88.
- Akbar N, Teo SP, Artini Hj-Abdul-Rahman HN, et al. Barriers and solutions for improving pain management practices in acute hospital settings: perspectives of healthcare practitioners for a pain-free hospital initiative. Ann Geriatr Med Res. 2019; 23(4): 190–196.
- Foo S, Teo S, Husaini A, et al. Cross-Cultural adaptation of advance care planning (ACP) for primary care settings. Aging Med Healthc. 2020; 11(1): 35–36.
- Webster R, Lacey J, Quine S. Palliative care: a public health priority in developing countries. J Public Health Policy. 2007; 28(1): 28–39.
- Aye SM, Amornmahaphyn S, Dwivedi S, et al. Development of palliative care services and impact of COVID–19 pandemic: situation analysis from five Asian countries. Pac J Med Sci. 2023; 24(1): 48–57.
- Nwosu AC, Debattista M, Rooney C, et al. Social media and palliative medicine: a retrospective 2-year analysis of global Twitter data to evaluate the use of technology to communicate about issues at the end of life. BMJ Support Palliat Care. 2015; 5(2): 207–212.
- Worldwide hospice palliative care alliance (WHPCA). World hospice and palliative care day [Internet]. London (UK); 2015. https://thewhpca.org/world-hospice-and-palliative-care-day/about-2/. (2.01.2024).
- Times of India. Food fest raises Rs 1.8L for palliative care [Internet]. Thiruvananthapuram, India; 2019 [updated 2019 Oct 6]. https://timesofindia.indiatimes.com/city/thiruvananthapuram/food-fest-raises-rs-1-8l-for-palliative-care/articleshow/71460325.cms. (4.01.2024).
- Zomato. Turning the Tables [Internet]. Zomato; 2017 [updated 2017 Apr 10]. https://blog.zomato.com/turning-the-tables (4.01.2024).
- Wittenberg-Lyles EM, Greene K, Sanchez-Reilly S. The palliative power of storytelling. J Hospice Palliat Nurs. 2007; 9(4): 198–205.
- Prajitha KC, Subbaraman MR, Siddharth Raman SR, et al. Need of community-based palliative care in rural India and factors that influence its sustainability: a comprehensive exploration using qualitative methodology in rural Puducherry, India. Palliat Care Soc Pract. 2023; 17.
- Pastrana T, Wüller J, Weyers S, et al. Insights from a community-based palliative care course: a qualitative study. BMC Palliat Care. 2021; 20(1): 106.
- Sharkey L, Loring B, Cowan M, et al. National palliative care capacities around the world: Results from the World Health Organization Noncommunicable Disease Country Capacity Survey. Palliat Med. 2018; 32(1): 106–113.
- Mulvihill C, Harrington A, Robertson A. A literature review of the role of the specialist palliative care community nurse. Int J Palliat Nurs. 2010; 16(4): 163–172.