Online first
Review paper
Published online: 2024-02-08

open access

Page views 193
Article views/downloads 173
Get Citation

Connect on Social Media

Connect on Social Media

Coaching as a method of support for informal and formal caregivers in palliative care

Joanna Sułkowska1, Ilona Kuźmicz2, Ewa Kawalec-Kajstura2, Stephen Palmer3, Tomasz Brzostek2

Abstract

Literature suggests that palliative care professionals and informal caregivers could be at risk of side effects of active participation in care. Therefore, different methods of support that can be offered to carers should be sought. Coaching is an intervention that facilitates another person to learn, grow and take responsibility for the level to which results are achieved. There are arguments which indicate the possibility and need to use coaching interventions to support nurses in their development and daily practice. Moreover, coaching can be used to implement interventions to improve informal caregivers’ knowledge and skills, as well as to increase their sense of self-efficacy and psychological resilience. Consequently, this paper is aimed at introducing coaching as a method for enhancing work and well-being among formal and informal carers, especially in palliative care. Coaching might be an appropriate approach in the context of palliative care. Regarding end-of-life care and its complexity, it is worth considering implementing it as a part of an interdisciplinary program. Consequently, it would be tailored to caregivers’ needs.

Article available in PDF format

View PDF Download PDF file

References

  1. World Health Organization [Internet]. Palliative care. https://www.who.int/news-room/fact-sheets/detail/palliative-care (30.08.2023).
  2. Zasowska-Nowak A. Directions of development of palliative care based on the literature. Palliative Medicine. 2022; 14(2): 55–63.
  3. Arias–Casais N, Garralda E, Rhee JY. et al. EAPC Atlas of Palliative Care in Europe 2019. Vilvoorde: EAPC Press. 2019. https://eapcnet.wordpress.com/2019/05/24/new-edition-of-eapc-atlas-of-palliative-care-in-europe-launches-at-16th-eapc-world-congress-in-berlin/ (30.08.2023).
  4. Ciałkowska-Rysz A. An appraisal of the situation of palliative care in Poland in 2018. Palliative Medicine. 2019; 11(4): 163–169.
  5. Stelcer B, Bilski B. The phenomenon of job stress and burnout syndrome in palliative care. Med Pr. 2020; 71(1): 69–78.
  6. Repka I, Betka P, Kuźmicz I, et al. Fatigue among parents caring for a child with cancer. Palliative Medicine. 2019; 11(2): 88–96.
  7. Fattori A, Pedruzzi M, Cantarella C, et al. The burden in palliative care assistance: A comparison of psychosocial risks and burnout between inpatient hospice and home care services workers. Palliat Support Care. 2023; 21(1): 49–56.
  8. Ahmad Zubaidi ZS, Ariffin F, Oun CT, et al. Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study. BMC Palliat Care. 2020; 19(1): 186.
  9. Dionne-Odom JN, Wells RD, Guastaferro K, et al. An early palliative care telehealth coaching intervention to enhance advanced cancer family caregivers' decision support skills: the CASCADE pilot factorial trial. J Pain Symptom Manage. 2022; 63(1): 11–22.
  10. Dermody E. Nurse coaching: providing holistic care to patients with cancer. Clin J Oncol Nurs. 2021; 25(3): 237–239.
  11. Shin J, Choi S. Online interventions geared toward increasing resilience and reducing distress in family caregivers. Curr Opin Support Palliat Care. 2020; 14(1): 60–66.
  12. Papadakos J, Samoil D, Umakanthan B, et al. What are we doing to support informal caregivers? A scoping review of caregiver education programs in cancer care. Patient Educ Couns. 2022; 105(7): 1722–1730.
  13. Chi NC, Demiris G, Lewis FM, et al. Behavioral and educational interventions to support family caregivers in end-of-life care: a systematic review. Am J Hosp Palliat Care. 2016; 33(9): 894–908.
  14. Grant AM. What is evidence-based executive, workplace and life coaching? In: Cavanagh M, Kemp T (eds) Evidence-based Coaching, Vol. 1: Theory, Research and Practice from the Behavioural Sciences. Bowen Hills, Queensland: Australian Academic Press 2005: 1–12.
  15. Grant AM. What constitutes evidence-based coaching? A two-by-two framework for distinguishing strong from weak evidence for coaching. Int J Evidence–Based Coach Ment. 2016; 14(1): 74–85.
  16. International Coach Federation [Internet] . https://coachingfederation.org/about (3.01.2024).
  17. Palmer S, Tubbs I, Whybrow A. Health coaching to facilitate the promotion of healthy behaviour and achievement of health-related goals. Int J Health Promotion Education. 2003; 41(3): 91–93.
  18. The Evidence Centre. Does Health Coaching Work? Summary of Key Themes from a Rapid Review of Empirical Evidence. 2014. Cambridge: The Evidence Centre and Health Education East of Europe (HEEoE). http://tpchealth.com/wp-content/uploads/2020/05/Does-health-coaching-work-Summary-of-key-themes-from-a-rapid-review-of-empirical-evidence.pdf (3.01.2024).
  19. Leigh J, Littlewood L, Lyons G. Reflection on creating a coaching approach to student nurse clinical leadership development. Br J Nurs. 2019; 28(17): 1124–1128.
  20. Richardson C, Wicking K, Biedermann N, et al. Coaching in nursing: an integrative literature review. Nurs Open. 2023; 10(10): 6635–6649.
  21. Anderson WG, Puntillo K, Cimino J, et al. Palliative care professional development for critical care nurses: a multicenter program. Am J Crit Care. 2017; 26(5): 361–371.
  22. Premanandan S, Ahmad A, Cajander Å, et al. Design suggestions for a persuasive e-coaching application: a study on informal caregivers' needs. Digit Health. 2023; 9: 1–12.
  23. Jablonski RA, Winstead V, Geldmacher DS. Description of process and content of online dementia coaching for family caregivers of persons with dementia. Healthcare (Basel). 2019; 7(1).
  24. Devine M, Meyers R, Houssemand C. How can coaching make a positive impact within educational settings? Procedia Social Behavioral Sci. 2013; 93: 1382–1389.
  25. Dulagil A, Green S, Ahern M. Evidence-based coaching to enhance senior students’ wellbeing and academic striving. Intern J Wellbeing. 2016; 6(3): 131–149.
  26. Vogt F, Rogalla M. Developing adaptive teaching competency through coaching. Teaching Teacher Edu. 2009; 25(8): 1051–1060.
  27. Curry RH. Medical students as health coaches, and more: adding value to both education and patient care. Isr J Health Policy Res. 2017; 6(1): 65.
  28. Jacobsen J, Alexander Cole C, Daubman BR, et al. A novel use of peer coaching to teach primary palliative care skills: coaching consultation. J Pain Symptom Manage. 2017; 54(4): 578–582.
  29. Dionne-Odom JN, Azuero A, Lyons KD, et al. Benefits of early versus delayed palliative care to informal family caregivers of patients with advanced cancer: outcomes from the ENABLE III randomized controlled trial. J Clin Oncol. 2015; 33(13): 1446–1452.
  30. Leo CG, Sabina S, Tumolo MR, et al. Burnout among healthcare workers in the COVID 19 era: a review of the existing literature. Front Public Health. 2021; 9: 750529.
  31. Yusuf FR, Kumar A, Goodson-Celerin W, et al. Impact of coaching on the nurse-physician dynamic. AACN Adv Crit Care. 2018; 29(3): 259–267.
  32. Costeira C, Dixe MA, Querido A, et al. Coaching as a model for facilitating the performance, learning, and development of palliative care nurses. SAGE Open Nurs. 2022; 8: 23779608221113864.
  33. Hackett A, Palmer S, Farrants J. An investigation into stress and coaching needs of staff working in the hospice service. Coaching Psychologist. 2007; 3(3): 139–143.
  34. Hackett A, Palmer S, Farrants J. Phase 1 of an investigation into the levels of stress in United Kingdom hospice services. Int J Palliat Nurs. 2009; 15(2): 66–72.
  35. Hackett A, Palmer S. An investigation into the perceived stressors for staff working in the hospice service. Int J Palliat Nurs. 2010; 16(6): 290–296.
  36. Rosa WE, Karanja V, Kpoeh JDN, et al. A virtual coaching workshop for a nurse-led community-based palliative care team in Liberia, West Africa, to promote staff well-being during COVID-19. Nurs Educ Perspect. 2021; 42(6): E194–E196.
  37. Pollak KI, Gao X, Arnold RM, et al. Feasibility of using communication coaching to teach palliative care clinicians motivational interviewing. J Pain Symptom Manag. 2020; 59(4): 787–793.
  38. Modderkolk L, van Meurs J, de Klein V, et al. Effectiveness of meaning-centered coaching on the job of oncology nurses on spiritual care competences: a participatory action research approach. Cancer Nurs. 2023 [Epub ahead of print].
  39. Richter S, van Zyl LE, Roll LC, et al. Positive psychological coaching tools and techniques: a systematic review and classification. Front Psychiatry. 2021; 12: 667200.
  40. Flanagan J, Post K, Hill R, et al. Feasibility of a nurse coached walking intervention for informal dementia caregivers. West J Nurs Res. 2022; 44(5): 466–476.
  41. Singh HK, Kennedy GA, Stupans I. Competencies and training of health professionals engaged in health coaching: A systematic review. Chronic Illn. 2022; 18(1): 58–85.
  42. Krug K, Miksch A, Peters-Klimm F, et al. Correlation between patient quality of life in palliative care and burden of their family caregivers: a prospective observational cohort study. BMC Palliat Care. 2016; 15: 4.



Palliative Medicine in Practice