Vol 15, No 1 (2021)
Review paper
Published online: 2021-02-26

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Practical aspects of nursing care provided to patients diagnosed with amyotrophic lateral sclerosis receiving home mechanical ventilation

Katarzyna Butna1, Anna Pyszora1, Anna Adamczyk1, Małgorzata Krajnik1
Palliat Med Pract 2021;15(1):42-52.

Abstract

The article presents the practical aspects of home care provided to patients diagnosed with amyotrophic
lateral sclerosis (ALS) receiving mechanical ventilation. It discusses issues related to qualifying patients
diagnosed with ALS for mechanical ventilation, patients’ palliative care at home and education of caregivers.
The most important nursing problems facing caregivers and recommended approaches are discussed.
Attention is drawn to the role of nurses who provide palliative care to patients staying at home, particularly
to their important role in educating patients’ families.

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Palliative Medicine in Practice