Vol 14, No 2 (2020)
Brief communication
Published online: 2020-05-20
Neurological palliative care — who, how, when?
1
Palliat Med Pract 2020;14(2):75-77.
Abstract
There is increasing collaboration between palliative care and neurology, intending to improve the quality
of care and quality of life of people with neurological disease and their families.
Keywords: palliative careneurologycollaboration
References
- World Health Organization. (2002). Palliative care. http://www.who.int/cancer/palliative/definition/en/.
- Oliver DJ, Borasio GD, Caraceni A, et al. A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. Eur J Neurol. 2016; 23(1): 30–38.
- Temel JS, Greer JA, Muzikansky A, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med. 2010; 363(8): 733–742.
- Gomes B, Calanzani N, Curiale V, et al. Effectiveness and cost-effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database Syst Rev. 2013(6): CD007760.
- Edmonds P, Hart S, Vivat B, et al. Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service. Mult Scler. 2010; 16(5): 627–636.
- Higginson IJ, McCrone P, Hart SR, et al. Is short-term palliative care cost-effective in multiple sclerosis? A randomized phase II trial. J Pain Symptom Manage. 2009; 38(6): 816–826.
- Veronese S, Gallo G, Valle A, et al. Specialist palliative care improves the quality of life in advanced neurodegenerative disorders: NE-PAL, a pilot randomised controlled study. BMJ Support Palliat Care. 2017; 7(2): 164–172.
- National Institute for Health and Care Excellence. NICE Guidance on Motor Neurone Disease. 2016. NICE. http://www.nice.org.uk/NG42.
- National Institute for Health and Care Excellence Parkinson’s disease in adults. 2017. https://www.nice.org.uk/guidance/ng71.
- Solari A, Giordano A, Sastre-Garriga J, et al. guideline task force, guideline task force. EAN guideline on palliative care of people with severe, progressive multiple sclerosis. Eur J Neurol. 2020 [Epub ahead of print].
- Aridegbe T, Kandler R, Walters SJ, et al. The natural history of motor neuron disease: assessing the impact of specialist care. Amyotroph Lateral Scler Frontotemporal Degener. 2013; 14(1): 13–19.
- Rooney J, Byrne S, Heverin M, et al. A multidisciplinary clinic approach improves survival in ALS: a comparative study of ALS in Ireland and Northern Ireland. J Neurol Neurosurg Psychiatry. 2015; 86(5): 496–501.
- Aoun SM, Breen LJ, Howting D, et al. Receiving the news of a diagnosis of motor neuron disease: What does it take to make it better? Amyotroph Lateral Scler Frontotemporal Degener. 2016; 17(3-4): 168–178.
- Chapman S. Advance Care planning. In: Oliver D. ed. End of life care in neurological disease. Springer, London 2013: 133–142.
- Robinson MT, Holloway RG, Robinson MT, et al. Palliative Care in Neurology. Mayo Clin Proc. 2017; 92(10): 1592–1601.
- Radbruch L, Payne S, Radbruch L, et al. White Paper on standards and norms for hospice and palliative care in Europe: part 1. Eur J Palliat Care. 2009; 16: 278–289.
- Bowers B, Ryan R, Kuhn I, et al. Anticipatory prescribing of injectable medications for adults at the end of life in the community: A systematic literature review and narrative synthesis. Palliat Med. 2019; 33(2): 160–177.
- Radbruch L, Leget C, Bahr P, et al. Board Members of EAPC, Board Members of EAPC. Euthanasia and physician-assisted suicide: A white paper from the European Association for Palliative Care. Palliat Med. 2016; 30(2): 104–116.
- Connolly S, Galvin M, Hardiman O, et al. End-of-life management in patients with amyotrophic lateral sclerosis. The Lancet Neurology. 2015; 14(4): 435–442.
- Creutzfeldt CJ, Robinson MT, Holloway RG, et al. Neurologists as primary palliative care providers: Communication and practice approaches. Neurol Clin Pract. 2016; 6(1): 40–48.
- Oliver D, Hepgul N, Borasio GD, et al. Collaboration between neurology and palliative care; a European survey. Poster at the 5th European Academy of Neurology Congress, Oslo. June 2019.
