open access

Vol 11, No 2 (2017)
Review paper
Published online: 2017-10-12
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Methodological bases of life quality assessment

Mikołaj Majkowicz1
Medycyna Paliatywna w Praktyce 2017;11(2):78-83.
Affiliations
  1. Via Medica, Swietokrzyska Str. 73, 80-180 Gdansk

open access

Vol 11, No 2 (2017)
Review paper
Published online: 2017-10-12

Abstract

In the article, some methodological bases for life quality assessment are discussed. Life quality is most often identified as a dependent variable conditioned by the disease development and treatment, and by psychological and social factors. A particular life quality assessment is subjective and should be done by the patient themselves. On the other hand research reveals substantial differences between a patient’s subjective life quality perception and a clinician’s objective evaluation. It is therefore advisable to compare and combine both, as it enriches interpretation and helps a patient reach for their own internal resources to improve their life quality or to identify factors that affect it negatively. For reliable outcomes of clinical life quality assessments, standardised measurement tools are indispensable. Tools designed in foreign languages must be appropriately cross-culturally adapted for Polish circumstances and their questionnaires must meet psychometric standards, i.e. reliability an validity. Methodology standards for life quality stud­ies have been set by The European Organization for Research and Treatment of Cancer in their work on life-quality-assessment research tools.

In addition, in examining people who are chronically and often seriously ill, patient’s overall condition and needs must be taken into consideration. Examining should not cause patient’s excessive effort or unnecessary discomfort in the necessity of answering disturbing questions.

Abstract

In the article, some methodological bases for life quality assessment are discussed. Life quality is most often identified as a dependent variable conditioned by the disease development and treatment, and by psychological and social factors. A particular life quality assessment is subjective and should be done by the patient themselves. On the other hand research reveals substantial differences between a patient’s subjective life quality perception and a clinician’s objective evaluation. It is therefore advisable to compare and combine both, as it enriches interpretation and helps a patient reach for their own internal resources to improve their life quality or to identify factors that affect it negatively. For reliable outcomes of clinical life quality assessments, standardised measurement tools are indispensable. Tools designed in foreign languages must be appropriately cross-culturally adapted for Polish circumstances and their questionnaires must meet psychometric standards, i.e. reliability an validity. Methodology standards for life quality stud­ies have been set by The European Organization for Research and Treatment of Cancer in their work on life-quality-assessment research tools.

In addition, in examining people who are chronically and often seriously ill, patient’s overall condition and needs must be taken into consideration. Examining should not cause patient’s excessive effort or unnecessary discomfort in the necessity of answering disturbing questions.

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Keywords

quality of life, methodology, measuring instruments

About this article
Title

Methodological bases of life quality assessment

Journal

Palliative Medicine in Practice

Issue

Vol 11, No 2 (2017)

Article type

Review paper

Pages

78-83

Published online

2017-10-12

Page views

1004

Article views/downloads

11198

Bibliographic record

Medycyna Paliatywna w Praktyce 2017;11(2):78-83.

Keywords

quality of life
methodology
measuring instruments

Authors

Mikołaj Majkowicz

References (10)
  1. Brzeziński J. Metodologiczny i etyczny kontekst badań nad jakością życia. In: Bańka A, Derbis R. ed. Psychologiczne aspekty jakości życia. Gemini, Poznań 1994.
  2. Majkowicz M. Problemy metodologiczne i techniki badawcze jakości życia w chorobach nowotworowych. In: Meyza J. ed. Jakość życia w chorobie nowotworowej. Centrum Onkologii Instytutu im. Marii Skłodowskiej-Curie, Warszawa 1997.
  3. Aaronson NK, Ahmedzai S, Bergman B, et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst. 1993; 85(5): 365–376.
  4. Aaronson NK, Cull A, Kaasa S, Sprangers AG. Modułowe postępowanie Eoropejskiej Organizacji do Badań i Leczenia Raka (EORTC) do oceny jakości życia chorych na nowotwory. In: Mayza J. ed. Jakość życia w chorobie nowotworowej — wybrane zagadnienia. Centrum Onkologii Instytutu im. M. Skłodowskiej-Curie, Warszawa 1997.
  5. Jassem J. Jakość życia chorych leczonych napromienianiem i cytostatykami. In: de Walden-Gałuszko K, Majkowicz M. ed. Jakość życia w chorobie nowotworowej. Wydawnictwo Uniwersytetu Gdańskiego, Gdańsk 1994.
  6. Majkowicz M. Problemy i perspektywy oceny jakości życia w chorobie nowotworowej (ujęcie krytyczne). In: de Walden-Gałuszko K. ed. Psychoonkologia. Biblioteka Psychiatrii Polskiej, Kraków 2000.
  7. Sęk H. Jakość życia a wymiar zdrowia. Ruch Prawniczy, Ekonomiczny i Socjologiczny. 1993: 27–32.
  8. Majkowicz M. Wielopoziomowa ocena stanu podmiotowego pacjentów z chorobą nowotworową (rozprawa habilitacyjna). Tom XXXV, Annales Academiae Medicae Gedanensis, Gdańsk. ; 2005(supl. 2).
  9. Majkowicz M. Wybrane zagadnienia metodologii i technik badawczych w psychoonkologii. In: de Walden-Gałuszko K. ed. Psychoonkologia. Biblioteka Psychiatrii Polskiej, Kraków 2000.
  10. Cella DF, Tulsky DS, Gray G, et al. The Functional Assessment of Cancer Therapy scale: development and validation of the general measure. J Clin Oncol. 1993; 11(3): 570–579.

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