open access

Vol 11, No 2 (2017)
Research paper
Published online: 2017-10-12
Get Citation

Analysis of the quality of life of patients in the advanced phase of chronic diseases

Weronika Ciećko, Ewa Bandurska, Marzena Zarzeczna-Baran, Alicja Siemińska
Medycyna Paliatywna w Praktyce 2017;11(2):84-90.

open access

Vol 11, No 2 (2017)
Original articles
Published online: 2017-10-12

Abstract

Introduction. Quality of life is a multidimensional and subjectively perceived phenomenon. Reduced quality of life is usually seen in patients, especially in advanced phase of chronic disease. This is due to number of factors such as limitation of self-reliance or pain. The aim of this work was to analyze the quality of life of people suffering from chronic illnesses in their advanced phase.

Patients and methods. In the study we included 81 patients with advanced chronic diseases (especially cancer). The average age was 72 years. The group consisted mainly of women (N=51; 63%). The study was conducted in 4 hospices in the Pomeranian Voivodship. A standardized EQ-5D-5L questionnaire was used to carry out the study.

Results. The analysis of EQ-5D-5L parameters showed worse quality of life for all respondents, with 38.3% of people who were unable to move on their own and 39.5% who had limited self-care capabilities, e.g., they required total help with daily personal hygiene. The 69.2% of respondents complained about the inability to do usual household or professional activities. Approximately 32.1% patients suffered from pain of strong or very strong intensity. In contrast, moderate anxiety and depression was experienced by 21% of patients and 7.4% of respondents, respectively. The cumulative analysis of the results of EQ-5D-5L questionnaire has shown that the factor most negatively affecting quality of life is the inability to perform normal activities (4.11 points).

Conclusion. All factors included in the questionnaire have an impact on the quality of life of patients di­agnosed with advanced chronic diseases. However, the ability to perform usual activities has the greatest negative impact on patients’ quality of life.

Abstract

Introduction. Quality of life is a multidimensional and subjectively perceived phenomenon. Reduced quality of life is usually seen in patients, especially in advanced phase of chronic disease. This is due to number of factors such as limitation of self-reliance or pain. The aim of this work was to analyze the quality of life of people suffering from chronic illnesses in their advanced phase.

Patients and methods. In the study we included 81 patients with advanced chronic diseases (especially cancer). The average age was 72 years. The group consisted mainly of women (N=51; 63%). The study was conducted in 4 hospices in the Pomeranian Voivodship. A standardized EQ-5D-5L questionnaire was used to carry out the study.

Results. The analysis of EQ-5D-5L parameters showed worse quality of life for all respondents, with 38.3% of people who were unable to move on their own and 39.5% who had limited self-care capabilities, e.g., they required total help with daily personal hygiene. The 69.2% of respondents complained about the inability to do usual household or professional activities. Approximately 32.1% patients suffered from pain of strong or very strong intensity. In contrast, moderate anxiety and depression was experienced by 21% of patients and 7.4% of respondents, respectively. The cumulative analysis of the results of EQ-5D-5L questionnaire has shown that the factor most negatively affecting quality of life is the inability to perform normal activities (4.11 points).

Conclusion. All factors included in the questionnaire have an impact on the quality of life of patients di­agnosed with advanced chronic diseases. However, the ability to perform usual activities has the greatest negative impact on patients’ quality of life.

Get Citation

Keywords

hospice care, quality of life, patient in the advanced phase of disease, EQ-5D-5L

About this article
Title

Analysis of the quality of life of patients in the advanced phase of chronic diseases

Journal

Palliative Medicine in Practice

Issue

Vol 11, No 2 (2017)

Article type

Research paper

Pages

84-90

Published online

2017-10-12

Bibliographic record

Medycyna Paliatywna w Praktyce 2017;11(2):84-90.

Keywords

hospice care
quality of life
patient in the advanced phase of disease
EQ-5D-5L

Authors

Weronika Ciećko
Ewa Bandurska
Marzena Zarzeczna-Baran
Alicja Siemińska

References (27)
  1. Jabłońska M, Lubas A, Niemczyk A. Jakość życia w przewlekłej chorobie nerek. Nefrol Dial. 2016; 20: 205–211.
  2. Ostrzyżek A. Jakość życia w chorobach przewlekłych. Probl Hig Epidemiol. 2008; 89: 467–470.
  3. Jones PW, Quirk FH, Baveystock CM, et al. The St George's Respiratory Questionnaire. Respir Med. 1991; 85 Suppl B(6): 25–31; discussion 33.
  4. Jones PW, Harding G, Berry P, et al. Development and first validation of the COPD Assessment Test. Eur Respir J. 2009; 34(3): 648–654.
  5. Herdman M, Gudex C, Lloyd A, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res. 2011; 20(10): 1727–1736.
  6. Rabin R, de Charro F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med. 2001; 33(5): 337–343.
  7. EuroQol Group. EuroQol--a new facility for the measurement of health-related quality of life. Health Policy. 1990; 16(3): 199–208.
  8. Golicki D, Niewada M, Hout B, et al. Interim EQ-5D-5L Value Set for Poland: First Crosswalk Value Set in Central and Eastern Europe. Value Health Regional Issues. 2014; 4: 19–23.
  9. EQ-5D-5L User Guide. http://www.euroqol.org/about-eq-5d/publications/user-guide.html (19.06.2017).
  10. Devlin NJ, Hansen P, Selai C. Understanding health state valuations: a qualitative analysis of respondents' comments. Qual Life Res. 2004; 13(7): 1265–1277.
  11. Whynes DK. TOMBOLA Group. Correspondence between EQ-5D health state classifications and EQ VAS scores. Health Qual Life Outcomes. 2008; 6: 94.
  12. Campbell A. The sense of well-being in America: Recent patterns and trends. McGraw-Hill, New York 1981.
  13. Stewart A, Hays R, Ware J. The MOS Short-form General Health Survey. Med Care. 1988; 26(7): 724–735.
  14. Ware JE, Sherbourne JR. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992; 30: 473–483.
  15. WHO Quality of Life – BREF (WHOQOL-BREF). http://www.who.int/substance_abuse/research_tools/whoqolbref/en/ (19.06.2017).
  16. Nolan CM, Longworth L, Lord J, et al. The EQ-5D-5L health status questionnaire in COPD: validity, responsiveness and minimum important difference. Thorax. 2016; 71(6): 493–500.
  17. Moro-Valdezate D, Peiró S, Buch-Villa E, et al. Evolution of Health-Related Quality of Life in Breast Cancer Patients during the First Year of Follow-Up. J Breast Cancer. 2013; 16(1): 104–111.
  18. Hawkins R, Doan J, Deshpande C, et al. Health-related quality of life (HRQoL), treatment satisfaction, and work productivity for patients (Pts) with advanced renal cell carcinoma (aRCC) in a chart review across six countries. J Clin Oncol. 2017; 35(6_suppl): 487–487.
  19. Cummins R. The domains of life satisfaction: An attempt to order chaos. Social Indicators Res. 1996; 38(3): 303–328.
  20. Scalone L., Cortesi P., Ciampichini R., Mantovani L.G. Health related quality of life norm data of the Italian general population: result using the EQ-5D-3L and EQ-5D-5L instruments. Epidemiol Biostat Public Health. http://ebph.it/article/view/11457 (2015).
  21. Yang F, Lau T, Lee E, et al. Comparison of the preference-based EQ-5D-5L and SF-6D in patients with end-stage renal disease (ESRD). Eur J Health Econ. 2015; 16(9): 1019–1026.
  22. Tang WR, Aaronson LS, Forbes SA. Quality of life in hospice patients with terminal illness. West J Nurs Res. 2004; 26(1): 113–128.
  23. Yeung EW, French P, Leung AO. The impact of hospice inpatient care on the quality of life of patients terminally ill with cancer. Cancer Nurs. 1999; 22(5): 350–357.
  24. Steele LL, Mills B, Hardin SR, et al. The quality of life of hospice patients: patient and provider perceptions. Am J Hosp Palliat Care. 2005; 22(2): 95–110.
  25. McMillan S, Dunbar S, Zhang W. Validation of the Hospice Quality-of-Life Index and the Constipation Assessment Scale in End-Stage Cardiac Disease Patients in Hospice Care. J Hosp Palliat Nurs. 2008; 10(2): 106–117.
  26. Weng LC, Huang HL, Wilkie DJ, et al. Predicting survival with the Palliative Performance Scale in a minority-serving hospice and palliative care program. J Pain Symptom Manage. 2009; 37(4): 642–648.
  27. Mess E, Szmyd K, Wójcik D. Kempińska E. Jakość życia pacjentów w terminalnej fazie choroby nowotworowej. Onkol Pol. 2005; 8: 158–161.

Important: This website uses cookies. More >>

The cookies allow us to identify your computer and find out details about your last visit. They remembering whether you've visited the site before, so that you remain logged in - or to help us work out how many new website visitors we get each month. Most internet browsers accept cookies automatically, but you can change the settings of your browser to erase cookies or prevent automatic acceptance if you prefer.

Czasopismo Medycyna Paliatywna w Praktyce dostęne jest również w Ikamed - księgarnia medyczna

Wydawcą serwisu jest  "Via Medica sp. z o.o." sp.k., ul. Świętokrzyska 73, 80–180 Gdańsk

tel.:+48 58 320 94 94, faks:+48 58 320 94 60, e-mail:  viamedica@viamedica.pl