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This birth is difficult but beautiful — parents’ experience of giving birth to a baby with a lethal foetal diagnosis
, 2, 3, 4, 5
Affiliations- Department of Midwifery, Centre of Postgraduate Medical Education, Warsaw, Poland
- Foundation for Supporting Midwives, Warsaw, Poland
- “Żelazna” Medical Centre, LLC, Warsaw, Poland
- District Hospital Complex in Oleśnica, Poland
- Department of Medical Statistics, School of Public Health, Centre of Postgraduate Medical Education, Warsaw, Poland
open access
Abstract
Introduction: The experience of childbirth, during which parents welcome and say goodbye to their child at the same time, is an unimaginably difficult/traumatic experience. This study aims to explore parents’ experiences following the birth of a terminally ill baby.
Material and methods: Semi-structured, in-depth interviews were conducted in this qualitative study. The interviews were developed using content analysis, by coding and constructing themes in iterative, collaborative meetings, using the MAXQDA tool. Thirteen parents took part in the study: nine women following a prenatal diagnosis with a lethal prognosis for their child and four fathers of those children.
Results: Content analysis revealed two main themes and two sub-themes. The first theme is “Embracing bad news during pregnancy” and the second theme is “This birth is difficult but beautiful”, within which the following sub-themes were identified: “Joy of meeting the baby” and “Saying goodbye to your child is important”.
Conclusions: For parents who were preparing for childbirth after prenatal diagnosis with a lethal prognosis for their child, the experience of childbirth had positive implications. Meeting their newborn child was an important moment for them, an affirmation of their parenthood. Parents emphasised that the time to say goodbye to their child was a celebration of their brief parenthood.
Abstract
Introduction: The experience of childbirth, during which parents welcome and say goodbye to their child at the same time, is an unimaginably difficult/traumatic experience. This study aims to explore parents’ experiences following the birth of a terminally ill baby.
Material and methods: Semi-structured, in-depth interviews were conducted in this qualitative study. The interviews were developed using content analysis, by coding and constructing themes in iterative, collaborative meetings, using the MAXQDA tool. Thirteen parents took part in the study: nine women following a prenatal diagnosis with a lethal prognosis for their child and four fathers of those children.
Results: Content analysis revealed two main themes and two sub-themes. The first theme is “Embracing bad news during pregnancy” and the second theme is “This birth is difficult but beautiful”, within which the following sub-themes were identified: “Joy of meeting the baby” and “Saying goodbye to your child is important”.
Conclusions: For parents who were preparing for childbirth after prenatal diagnosis with a lethal prognosis for their child, the experience of childbirth had positive implications. Meeting their newborn child was an important moment for them, an affirmation of their parenthood. Parents emphasised that the time to say goodbye to their child was a celebration of their brief parenthood.
Keywords
stillbirth, lethal foetus diagnosis, perinatal loss, midwifery, parents
About this articleTitle
This birth is difficult but beautiful — parents’ experience of giving birth to a baby with a lethal foetal diagnosis
Journal
Palliative Medicine in Practice
Issue
Article type
Research paper
Pages
225-232
Published online
2023-04-28
Page views
546
Article views/downloads
254
DOI
Bibliographic record
Palliat Med Pract 2023;17(4):225-232.
Keywords
stillbirth
lethal foetus diagnosis
perinatal loss
midwifery
parents
Authors
Urszula Tataj-Puzyna
Beata Szlendak
Magdalena Szabat
Joanna Krzeszowiak
Dorota Sys
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