Vol 15, No 1 (2021)
Review paper
Published online: 2021-01-13
The importance of narrative medicine in palliative care
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Palliat Med Pract 2021;15(1):64-69.
Abstract
This article discusses narrative medicine, i.e. drawing knowledge from the narratives of both patients and medical staff. Information obtained in this way can be used in the diagnosis and treatment process and it also has an educational value. This article aims to present the importance of using narrative medicine for palliative care, as well as building relations between doctors and patients. Challenges related to narratives were identified, with their particular significance during the current COVID-19 pandemic taken into account as well.
Keywords: communicationcultural contextnarrative medicinenarrativestory telling
References
- Charon R. What to do with stories: the sciences of narrative medicine. Canadian Family Physician. 2007; 53(8): 1265–1267.
- Kvåle K, Haugen DF, Synnes O. Patients' illness narratives-From being healthy to living with incurable cancer: Encounters with doctors through the disease trajectory. Cancer Rep (Hoboken). 2020; 3(2): e1227.
- Franke RJ. Focus: The Aging Brain: Palliative Care and the Humanities: Centralizing the Patient at the End of Life. Yale J Biol Med. 2016; 89(1): 105.
- Hildebrandt C, Mayer H, Koller A. Experiences of patients with colorectal cancer from diagnosis until completion of treatment: A meta-ethnography approach. Psychooncology. 2019; 28(2): 219–227.
- Frank AW. The wounded storyteller: Body, illness, and ethics. University of Chicago Press 2013.
- Rudnik A, Bieńkowski J. Interpretacyjna Analiza Fenomenologiczna w badaniach jakościowych w psychologii...Przegląd najnowszych badań. Annales Universitatis Paedagogicae Cracoviensis Studia Psychologica. 2018; 11: 27–38.
- Aoun SM, Nekolaichuk C. Improving the evidence base in palliative care to inform practice and policy: thinking outside the box. J Pain Symptom Manage. 2014; 48(6): 1222–1235.
- Charon R. Narrative medicine. New York 2006.
- Charon R. Narrative medicine: form, function, and ethics. Ann Intern Med. 2001; 134(1): 83–87.
- Beck JR. Conversations With Patients. Clinical J Oncol Nurs. 2018; 22(5): 481–482.
- Charon R, Wyer P. Narrative evidence based medicine. Lancet. 2008; 371(9609): 296–297.
- Stanley P, Hurst M. Narrative palliative care: a method for building empathy. J Soc Work End Life Palliat Care. 2011; 7(1): 39–55.
- De Benedetto MA, de Castro AG, de Carvalho E, et al. From suffering to transcendence: narratives in palliative care. Can Fam Physician. 2007; 53(8): 1277–1279.
- Walter S, Keinki C, Hübner J. [Treatment decisions in oncology : Walking the tightrope between honesty and hope, lifetime, and quality of life]. HNO. 2020; 68(7): 492–497.
- Holstein M. Reflections on death and dying. Academic medicine: Journal of the Association of American Medical Colleges. 1997; 72(10): 848–855.
- Cierpka A, Małek K, Horodeńska M. Original article What does it mean to live after heart transplantation? The lived experience of heart transplant recipients. A qualitative study. Health Psychology Report. 2015; 2: 123–130.
- Kitayama K. A cup of magic. Patient Educ Couns. 2019; 102(1): 180–181.
- Laskow T, Small L, Wu DS. Narrative Interventions in the Palliative Care Setting: A Scoping Review. J Pain Symptom Manage. 2019; 58(4): 696–706.
- Cenci C. Narrative medicine and the personalisation of treatment for elderly patients. Eur J Intern Med. 2016; 32: 22–25.
- Carey ML, Zucca AC, Freund MAg, et al. Systematic review of barriers and enablers to the delivery of palliative care by primary care practitioners. Palliat Med. 2019; 33(9): 1131–1145.
- Yardley S, Kinston R, Lefroy J, et al. 'What do we do, doctor?' Transitions of identity and responsibility: a narrative analysis. Adv Health Sci Educ Theory Pract. 2020; 25(4): 825–843.
- Colgan R. I remember...it was December. Ann Fam Med. 2014; 12(3): 276–278.
- Hebblewhite A. A medical student's reflection on palliative care: Managing emotional connection with patients. Palliat Support Care. 2015; 13(2): 405–408.
- Budlovsky B. Finding the humanity: Learning to listen in emergency medicine. CJEM. 2018; 20(5): 786–787.
- Coyle N, Sculco L. Communication and the patient/physician relationship: a phenomenological inquiry. J Support Oncol. 2003; 1(3): 206–215.
- Sobczak K, Pawłowski L, Pietrzykowska M, et al. Delivering bad news by physicians – Polish reality check. Journal of Medical Science. 2016; 85(3): 172.
- Sobczak K, Leoniuk K, Janaszczyk A. Delivering bad news: patient's perspective and opinions. Patient Prefer Adherence. 2018; 12: 2397–2404.
- Cerceo E. The spaces in between. CMAJ. 2017; 189(24): E838–E839.
- Chang RY. Only life. Can Fam Physician. 2015; 61(1): 66–7, e60.
- Hoffman MR, Hoffman MR. The Sound of Silence-When There Are No Words. JAMA. 2019; 322(2): 117–118.
- Lau SY. Dear Mrs. P. CMAJ. 2019; 191(6): E168–E169.
- Wu DS, Kern DE, Dy SM, et al. Narrative Approach to Goals of Care Discussions: A Novel Curriculum. J Pain Symptom Manage. 2019; 58(6): 1033–1039.e1.
- Davies EA. Why we need more poetry in palliative care. BMJ Support Palliat Care. 2018; 8(3): 266–270.
- Gilligan MC, Osterberg LG, Rider EA, et al. Views of institutional leaders on maintaining humanism in today's practice. Patient Educ Couns. 2019; 102(10): 1911–1916.
- Sobczak K. Przekazywanie informacji o niekorzystnej diagnozie i rokowaniu. Forum Med Rodz. 2014; 8(6): 320–328.
- Kheirbek RE. Behind the Veil. Acad Med. 2016; 91(11): 1575.
- Chammas D. Seeing With My Ears. J Pain Symptom Manage. 2020 [Epub ahead of print].
- Sutherland AE, Stickland J, Wee B. Can video consultations replace face-to-face interviews? Palliative medicine and the Covid-19 pandemic: rapid review. BMJ Support Palliat Care. 2020; 10(3): 271–275.
