Vol 14, No 1 (2020)
Research paper
Published online: 2020-05-08

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An analysis of medical records of patients diagnosed with cardiomyopathy and provided with inpatient palliative care

Aleksandra Niemiec1, Wojciech Siejak1, Małgorzata Niemiec1, Riad El-Zein1
Palliat Med Pract 2020;14(1):7-11.

Abstract

Palliative care, currently also called ‘supportive care’, is a specialist care that focuses on improving the
quality of life by relieving symptoms and stress in patients with an incurable disease. The actions taken are
aimed at preventing suffering, treating pain and other somatic symptoms as well as at helping to solve
psychosocial and spiritual problems, along with support for the patient’s family.
Heart failure caused by cardiomyopathy is an incurable disease that limits vital functions and is provided
with guaranteed palliative and hospice care. This is a progressive disease and therapy only slows down its
course, which means that the patient will be accompanied by the diagnosis throughout their whole life
and this disease will be the cause of death in some cases.
This article includes an analysis of the documentation of patients with cardiomyopathy, in whom standard
methods of treatment, facilitating the improvement of heart function, proved to be ineffective. In order to
improve the quality of life, patients were transferred to the Department of Palliative Medicine.

Palliat Med Pract 2020; 14, 1: 7–11

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References

  1. Najwyższa Izba Kontroli: Zdążyć z pomocą. https://www.nik.gov.pl/aktualnosci/opieka-paliatywna-i-hospicyjna.html (20 December 2019).
  2. Kościuczuk U, Jakubów P, Siemiątkowski A, et al. Hospitalization of palliative non-cancer patients in a stationary hospice — z observational center study in Białystok. Palliat Med Practices. 2018; 12(1): 1–7.
  3. Instytut Kardiologii, Kardiomiopatie i zapalenie mięśnia sercowego. http://www.ikard.pl/kardiomiopatie-i-zapalenie-miesnia-sercowego.html (21 October 2019).
  4. Rogers JG, Patel CB, Mentz RJ, et al. Palliative Care in Heart Failure: The PAL-HF Randomized, Controlled Clinical Trial. J Am Coll Cardiol. 2017; 70(3): 331–341.
  5. Mentz RJ, Tulsky JA, Granger BB, et al. The palliative care in heart failure trial: rationale and design. Am Heart J. 2014; 168(5): 645–651.e1.
  6. Antonione R, et al. Palliative care in the cardiac setting: a consensus document of the Italian Society of Cardiology / Italian Society of Palliative Care (SIC/SICP). G Ital Cardiol (Rome). 2019; 20(1): 46–61.
  7. Sobański P, Krajnik M. Opieka paliatywna nad osobami z niewydolnością serca. In: De Walden-Gałuszko K, Ciałkowska-Rysz A. ed. Medycyna Paliatywna. Wydawnictwo Lekarskie PZWL, Warsaw 2015: 320–332.
  8. Journal of Laws of 2013, item 1347: Rozporządzenie Ministra Zdrowia z dnia 29 października 2013 r. w sprawie świadczeń gwarantowanych z zakresu opieki paliatywnej i hospicyjnej [Regulation of the Minister of Health of 29 October 2013 on guaranteed palliative and hospice services.
  9. Budaj A. Choroby układu krążenia. In: Interna Szczeklika. Podręcznik chorób wewnętrznych. Medycyna Praktyczna Publishing House, Kraków 2019: 378–390.
  10. Agarwal S, Tuzcu EM, Desai MY, et al. Updated meta-analysis of septal alcohol ablation versus myectomy for hypertrophic cardiomyopathy. J Am Coll Cardiol. 2010; 55(8): 823–834.
  11. Mandeep R, Mehra MD, Charles E, et al. The 2016 International Society for Heart Lung Transplantation listing criteria for heart transplantation: A 10-year update (Guidelines) . J Heart Lung Transplant. 2015; 35(1).
  12. Sobański P, Grodzicki T, Krajnik M. Opieka Paliatywna nad chorymi z niewydolnością serca. Omówienie stanowiska ekspertów European Association for Palliative Care 2019. Medycyna Praktyczna Publishing House. 2019(10): 10–18.
  13. Krajnik M. Duszność i inne problemy kliniczne w opiece nad chorym w stanie terminalnym – co powinien wiedzieć internista. https://www.mp.pl/wyklady_wideo/interna/interna2014/102174,dusznosc-i-inne-problemy-kliniczne-w-opiece-nad-chorym-w-stanie-terminalnym-co-powinien-wiedziec-internista (30 January 2020).
  14. Lewis KB, Stacey D, Matlock DD. Making decisions about implantable cardioverter-defibrillators from implantation to end of life: an integrative review of patients' perspectives. Patient. 2014; 7(3): 243–260.
  15. Pasierski T. Zaburzenia ze strony układu krążenia. In: Ciałkowska–Rysz A, Dzierżanowski T. ed. Medycyna Paliatywna. Termedia Publishing House, Poznań 2019: 163–167.
  16. Sobański P, Stec S, Opolski G. Niewydolność serca jako cel dla medycyny paliatywnej. Medycyna Paliatywna w Praktyce. 2010; 4(4): 168–172.
  17. Lemond L, Allen LA. Palliative care and hospice in advanced heart failure. Prog Cardiovasc Dis. 2011; 54(2): 168–178.
  18. Zapewnienie opieki paliatywnej i hospicyjnej – Informacja o wynikach kontroli NIK. https://www.nik.gov.pl/plik/id,21371,vp,24011.pdf (30 January 2020).
  19. Pasierski T. Modification of cardiovascular pharmacotherapy in palliative care patients with cancer: a narrative review. Pol Arch Intern Med. 2017; 127(10): 687–693.
  20. Jaarsma T, Beattie JM, Ryder M, et al. Advanced Heart Failure Study Group of the HFA of the ESC. Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail. 2009; 11(5): 433–443.



Palliative Medicine in Practice