Vol 9, No 3 (2023)
Research paper
Published online: 2023-06-28

open access

Page views 292
Article views/downloads 297
Get Citation

Connect on Social Media

Connect on Social Media

Everything you always wanted to know about systemic sclerosis but were afraid to ask: Part 3. Vital activity of patients with systemic sclerosis

Klaudia Palka1, Barbara Buc-Piorun1, Karolina Nowak1, Monika Bultrowicz1, Martyna Kuczyńska1, Przemysław Kotyla1, Ewelina Machura1
Rheumatology Forum 2023;9(3):96-104.

Abstract

Systemic sclerosis is an inflammatory connective tissue disease of autoimmune origin, characterized by progressive fibrosis of the skin, internal organs and damage to blood vessels referred to as vasculopathy. Although the most visible symptom of the disease is hardening of the skin, the involvement of internal organs leading to their extreme insufficiency determines the severity of the disease, resulting in a severe course for the patient.
The method used to carry out this test is the diagnostic survey method. The paper used a questionnaire that contained 22 questions, including 7 openended questions and 2 multiple choice questions. 
The aim of the work is to show how systemic sclerosis affects the patient’s vital activity, with particular emphasis on those activities of everyday life that cause the greatest difficulty. In addition, an attempt was made to determine how the progression of the disease affects the physical and mental sphere of patients with systemic sclerosis.
Studies show that systemic sclerosis is a disease that affects the life activity of patients to varying degrees. It penetrates both the physical sphere of the patient, gradually limiting his independence, but also into his mental sphere.

Article available in PDF format

View PDF Download PDF file

References

  1. Pączek L, Mucha K, Froncewicz B. Chroby wewnętrzne. Podręcznik dla studentów pielęgniarstwa i położnictwa. PZWL, Warszawa 2014: 531–535.
  2. Olesińska M. Reumatologia w gabinecie lekarza Podstawowej Opieki Zdrowotnej. PZWL, Warszawa 2019: 369–382.
  3. Bromirska M, Smoleńska Ż, Zdrojewski Z. Etiologia i czynniki ryzyka rozwoju twardziny układowej-przegląd literatury. Forum Reumatol. 2018; 4(1): 52–56.
  4. Zimmermann-Górska I. Reumatologia kliniczna. PZWL, Warszawa 2008: 603–623.
  5. Snaith M. ABC reumatologii. PZWL, Warszawa 2007: 122–127, 141–150.
  6. Sierakowski S, Sierakowska M, Zimmermann-Górska I. Postępy reumatologii klinicznej. PZWL, Warszawa 2014: 192–201.
  7. Lis-Święty A, Brzezińska-Wcisło L. Twardzina układowa – czynniki prognostyczne, aktywność i ciężkość choroby. Przegląd Dermatol. 2010; 97: 398–405.
  8. Peoples C, Medsger Jr TA, Lucas M, et al. Gender differences in systemic sclerosis: relationship to clinical features, serologic status and outcomes. J Scleroderma Relat Disord. 2016; 1(2): 177–240.
  9. Buras A, Waszkiewicz N, Szulc A. Depresja i proces zapalny w chorobach reumatologicznych. Postepy Hig Med Dosw. 2015; 69: 162–168.
  10. Galetti I, di Nunzio S, Brogelli L, et al. How do systemic sclerosis manifestations influence patients' lives? Results from a survey on patients and caregivers. Curr Med Res Opin. 2021; 37(suppl 2): 5–15.
  11. Kowal-Bielecka O. Powikłania naczyniowe twardziny układowej. Reumatologia. 2012; 5(1): 1–8.
  12. Liem SIE, Meessen JM, Wolterbeek R, et al. Physical activity in patients with systemic sclerosis. Rheumatol Int. 2018; 38(3): 443–453.
  13. Sandqvist G, Scheja A, Hesselstrand R. Pain, fatigue and hand function closely correlated to work ability and employment status in systemic sclerosis. Rheumatology (Oxford). 2010; 49(9): 1739–1746.
  14. Haor B, Szambelan J, Pietrzak M, et al. Opieka pielęgniarska nad pacjentem z deficytami sprawności w czynnościach dnia codziennego w przebiegu twardziny układowej. Zeszyty Naukowe. Zbliżenia Cywilizacyjne. 2019; 15(2): 38–51.