Vol 7, No 4 (2021)
Review paper
Published online: 2022-03-29
Scales for the assessment of children with rheumatic diseases
12
, 12
, 12
DOI: 10.5603/FR.2021.0023
Rheumatol. Forum 2021;7(4):177-182.
Abstract
This paper presents methods of assessing patientswith juvenile idiopathic arthritis. Functional scales,methods of assessing pain, fatigue, quality of life, and motor skills are important not only for clinicians but also for patients. They enable considering many aspects important for the everyday life of a young person with rheumatic disease and his or her family
during the treatment. The recognition of the patient’s needs on the basis of the described scales may contribute to the patient becoming more active and involved in the treatment process. The research presented in the paper shows that the scales are widely used in many countries.
Keywords: ocena bóluocena jakości życiamłodzieńcze idiopatyczne zapalenie stawów
References
- Smolewska E, Żuber Z. Zalecenia ACR 2019 leczenia młodzieńczego idiopatycznego zapalenia stawów a możliwości terapii w warunkach polskich. Forum Reumatologiczne. 2020; 6(3): 105–112.
- Oberle EJ, Harris JG, Verbsky JW. Polyarticular juvenile idiopathic arthritis - epidemiology and management approaches. Clin Epidemiol. 2014; 6: 379–393.
- Stinson JN, Luca NJC, Jibb LA. Assessment and management of pain in juvenile idiopathic arthritis. Pain Res Manag. 2012; 17(6): 391–396.
- Arnstad ED, Iversen JM, Uglem M, et al. Pain sensitivity in young adults with juvenile idiopathic arthritis: a quantitative sensory testing study. Arthritis Res Ther. 2020; 22(1): 262.
- Luca NJ, Stinson JN, Feldman BM, et al. Validation of the Standardized Universal Pain Evaluations for Rheumatology Providers for Children and Youth (SUPER-KIDZ). J Orthop Sports Phys Ther. 2017; 47(10): 731–740.
- Consolaro A, Ruperto N, Bazso A, et al. Paediatric Rheumatology International Trials Organisation. Development and validation of a composite disease activity score for juvenile idiopathic arthritis. Arthritis Rheum. 2009; 61(5): 658–666.
- Consolaro A, Negro G, Chiara Gallo M, et al. Defining criteria for disease activity states in nonsystemic juvenile idiopathic arthritis based on a three-variable juvenile arthritis disease activity score. Arthritis Care Res (Hoboken). 2014; 66(11): 1703–1709.
- Dempster H, Porepa M, Young N, et al. The clinical meaning of functional outcome scores in children with juvenile arthritis. Arthritis & Rheumatism. 2001; 44(8): 1768–1774, doi: 10.1002/1529-0131(200108)44:8<1768::aid-art312>3.0.co;2-q.
- Haverman L, Grootenhuis MA, van den Berg JM, et al. Predictors of health-related quality of life in children and adolescents with juvenile idiopathic arthritis: results from a Web-based survey. Arthritis Care Res (Hoboken). 2012; 64(5): 694–703.
- Varni JW, Seid M, Smith Knight T, et al. The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis Rheum. 2002; 46(3): 714–725.
- Listing M, Mönkemöller K, Liedmann I, et al. The majority of patients with newly diagnosed juvenile idiopathic arthritis achieve a health-related quality of life that is similar to that of healthy peers: results of the German multicenter inception cohort (ICON). Arthritis Res Ther. 2018; 20(1): 106.
- Tarakçı E, Arman N, Barut K, et al. Fatigue and sleep in children and adolescents with juvenile idiopathic arthritis:a cross-sectional study. Turk J Med Sci. 2019; 49(1): 58–65.
- Heale L, Houghton K, Rezaei E, et al. Clinical and Psychosocial Stress Factors are Associated with Decline in Physical Activity Over Time in Children with Juvenile Idiopathic Arthritis. Pediatr. Rheumatol. 2021; 19: 1–10.
- Oliveira S, Ravelli A, Pistorio A, et al. Pediatric Rheumatology International Trials Organization (PRINTO). Proxy-reported health-related quality of life of patients with juvenile idiopathic arthritis: the Pediatric Rheumatology International Trials Organization multinational quality of life cohort study. Arthritis Rheum. 2007; 57(1): 35–43.
- van der Net J, van der Torre P, Engelbert RHh, et al. Motor performance and functional ability in preschool- and early school-aged children with Juvenile Idiopathic Arthritis: a cross-sectional study. Pediatr Rheumatol Online J. 2008; 6: 2.
- Olsson E, Ahl H, Bengtsson K, et al. The use and reporting of neonatal pain scales: a systematic review of randomized trials. Pain. 2021; 162(2): 353–360.
