The importance of health-related quality of life (HRQoL) assessment in oncology care for adolescents and young adults (AYA)
Abstract
Introduction. Patient-Reported Outcome Measures (PROM) are questionnaires completed by patients to assess their perceptions of health status and health-related quality of life (HRQoL). Health-related quality of life encompasses various domains of functioning (for example physical, emotional, social) and significant symptoms (for example pain, fatigue, gastrointestinal disturbances).
Material and methods. The scientific literature was systematically reviewed to investigate the role and international experiences in assessing health-related quality of life (HRQoL) in oncology care for adolescents and young adults (AYA).
Results. Ensuring high-quality care and improved health outcomes is essential within all healthcare systems. Monitoring outcomes such as survival, HRQoL, school or work participation, and social engagement is vital in oncology. Health-related quality of life assessment can enhance cancer care by identifying physical or psychological issues that might go undetected and can be used to tailor treatment approaches.
Conclusions. Healthcare systems should focus on an integrated approach to HRQoL assessment that encompasses both physical and psychosocial aspects to effectively support adolescents and young adults in their coping with cancer disease.
Keywords: health-related quality of lifeHRQoLAYAyoung adultsoncology care
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