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The Myasthenia Gravis-specific Activities of Daily Living scale as a useful outcome measure and in routine clinical management in Polish patients
Affiliations- Department of Neurology in Zabrze, Medical University of Silesia in Katowice with the Division of Dentistry in Zabrze
- Department of Thoracic Surgery, Medical University of Silesia, ul. 3-go Maja 13-15, Zabrze, Poland
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Abstract
The Myasthenia Gravis-Activities of Daily Living scale (MG-ADL) is a short, and easy to use disease-specific quality of life during daily routine tool in myasthenia gravis.
ObjectivesThe purpose of our work was to evaluate neurological condition patients with myasthenia gravis using the form MG-ADL in order to enable the introduction in common use of an instrument which allows for the assessment of patients with myasthenia gravis.
Patients and MethodsThe total number of 50 patients with MG were qualified for the examination. Each patient underwent neurological examination and completed the quality of life evaluation questionnaire MQ-ADL. Additionally, each patient was asked to evaluate the quality of his/her life by means of questionnaire MG-QOL 15 and MG Composite in Polish language version.
ResultsOur analysis showed a positive correlation with other scales used - MG-QOL 15, MGFA, MG Composite. The intensification of neurological symptoms showed significant relation with obtained higher number of points in MG-ADL questionnaire. The MG-ADL was found to have high internal consistency, test–retest reliability, and concurrent validity.
ConclusionWe confirmed reliability and dependability of the questionnaire in the the test-retest assessment. The MG-ADL is accepted to be a reliable and valuable tool for measuring disease-specific QOL in Polish patients with MG.
Abstract
The Myasthenia Gravis-Activities of Daily Living scale (MG-ADL) is a short, and easy to use disease-specific quality of life during daily routine tool in myasthenia gravis.
ObjectivesThe purpose of our work was to evaluate neurological condition patients with myasthenia gravis using the form MG-ADL in order to enable the introduction in common use of an instrument which allows for the assessment of patients with myasthenia gravis.
Patients and MethodsThe total number of 50 patients with MG were qualified for the examination. Each patient underwent neurological examination and completed the quality of life evaluation questionnaire MQ-ADL. Additionally, each patient was asked to evaluate the quality of his/her life by means of questionnaire MG-QOL 15 and MG Composite in Polish language version.
ResultsOur analysis showed a positive correlation with other scales used - MG-QOL 15, MGFA, MG Composite. The intensification of neurological symptoms showed significant relation with obtained higher number of points in MG-ADL questionnaire. The MG-ADL was found to have high internal consistency, test–retest reliability, and concurrent validity.
ConclusionWe confirmed reliability and dependability of the questionnaire in the the test-retest assessment. The MG-ADL is accepted to be a reliable and valuable tool for measuring disease-specific QOL in Polish patients with MG.
Keywords
Quality of life, MG-ADL, Myasthenia gravis, Polish population
About this articleTitle
The Myasthenia Gravis-specific Activities of Daily Living scale as a useful outcome measure and in routine clinical management in Polish patients
Journal
Neurologia i Neurochirurgia Polska
Issue
Pages
368-373
Published online
2018-01-11
Page views
283
Article views/downloads
2056
DOI
10.1016/j.pjnns.2017.12.012
Bibliographic record
Neurol Neurochir Pol 2018;52(3):368-373.
Keywords
Quality of life
MG-ADL
Myasthenia gravis
Polish population
Authors
Izabela Monika Rozmilowska
Monika Helena Adamczyk-Sowa
Damian Czyzewski
