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Published online: 2021-10-30
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Cultural adaptation and validation of the Polish version of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT) questionnaire

Kathie Sarzyńska1, Jacek Polański2, Grzegorz Kopeć3, Ewa Mroczek4, Beata Jankowska-Polańska1
DOI: 10.33963/KP.a2021.0149
·
Pubmed: 34729736
Affiliations
  1. Division of Nervous System Diseases, Department of Clinical Nursing, Faculty of Health Science, Wroclaw Medical University, Wrocław, Poland
  2. Department of Internal Medicine, Occupational Diseases, Hypertension and Clinical Oncology, Wroclaw Medical University, Wrocław, Poland
  3. Department of Cardiac and Vascular Diseases, Jagiellonian University Medical College, John Paul II Hospital in Krakow, Kraków, Poland
  4. Department of Cardiology Provincial Specialist Hospital Research and Development Center, Wrocław, Poland

open access

Online first
Short communication
Published online: 2021-10-30

Abstract

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Abstract

Not available
Get Citation
About this article
Title

Cultural adaptation and validation of the Polish version of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT) questionnaire

Journal

Kardiologia Polska (Polish Heart Journal)

Issue

Online first

Article type

Short communication

Published online

2021-10-30

DOI

10.33963/KP.a2021.0149

Pubmed

34729736

Authors

Kathie Sarzyńska
Jacek Polański
Grzegorz Kopeć
Ewa Mroczek
Beata Jankowska-Polańska

References (10)
  1. Benza RL, Miller DP, Barst RJ, et al. An evaluation of long-term survival from time of diagnosis in pulmonary arterial hypertension from the REVEAL Registry. Chest. 2012; 142(2): 448–456.
  2. Kopeć G, Kurzyna M, Mroczek E, et al. Characterization of patients with pulmonary arterial hypertension: data from the Polish Registry of Pulmonary Hypertension (BNP-PL). J Clin Med. 2020; 9(1): 173.
  3. Kopeć G, Kurzyna M, Mroczek E, et al. Database of Pulmonary Hypertension in the Polish Population (BNP‑PL): design of the registry. Kardiol Pol. 2019; 77(10): 972–974.
  4. Galie N, Humbert M, Vachiery JL, et al. 2015 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension. Kardiol Pol. 2015; 73(12): 1127–1206.
  5. Chin KM, Gomberg-Maitland M, Channick RN, et al. Psychometric validation of the pulmonary arterial hypertension-symptoms and impact (PAH-SYMPACT) questionnaire: results of the SYMPHONY trial. Chest. 2018; 154(4): 848–861.
  6. Amedro P, Basquin A, Gressin V, et al. Health-related quality of life of patients with pulmonary arterial hypertension associated with CHD: the multicentre cross-sectional ACHILLE study. Cardiol Young. 2016; 26(7): 1250–1259.
  7. Kurzyna M, Małaczyńska-Rajpold K, Koteja A, et al. An implantable pump Lenus pro® in the treatment of pulmonary arterial hypertension with intravenous treprostinil. BMC Pulm Med. 2017; 17(1): 162.
  8. McKenna SP, Ratcliffe J, Meads DM, et al. Development and validation of a preference based measure derived from the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for use in cost utility analyses. Health Qual Life Outcomes. 2008; 6: 65.
  9. Dębska G, Mazurek H. Validation of Polish version of CFQoL in patients with cystic fibrosis [article in Polish]. Pol Med J. 2007; 23(137): 340–343.
  10. Nunnally J. Psychometric Theory, 2nd ed. McGraw-Hill, New York 1978.

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